Thomas Falkenstein (Germany)
DSRCT Diagnosed 6/99 at age 31
Here's a letter from Thomas (8/24/05):
I was diagnosed in June 1999 (without having any health problems at all!) and I had already two large tumors in the abdomen (13 cm in left mesocolon and 8 cm between bladder and rectum) and my lymph nodes were already infected. I guess the main thing for me was that I underwent immediately a very radical surgery at Diakonie Hospital in Mannheim (Germany). As my wife is a medical doctor one of her professors and nowadays a close friend of mine, Dr. Bernhard Rumstadt, performed the surgery. He is the head of surgery at this Hospital. Afterwards I was treated with a high-dose chemotherapy in combination with stem-cell transplantation at University Hospital in Freiburg. My doctor there was Prof. Dr. Roland Mertelmann, who is the head of oncology.
The exact treatment there was:
a) 2 cycles VIP-E
b) CCT High-dose chemotherapy with
- Cyclophosphamid 1500 mg/m2
- Carboplatin 200 mg/m2
- Thiotepa 125 mg/m2
c) Stem cell transplantation with expanded stem cells (4 x 10*6 WBC)
Since then I had no further treatment. I'm still in "complete remission" and feeling perfectly well.... Once a year I travel back to Freiburg to have a scan done, so far everything is clear.
If you want to you can contact my doctors here are their addresses:
PD Dr. Bernhard Rumstadt, Diakonie Hospital Mannheim, Medical Director Surgery
Phone: +49-0621-8102-215, eMail: b.rumstadt@diako-ma.de, Web:
http://www.diako-mannheim.de/25.0.html
Prof. Dr. Roland Mertelsmann, Medical Director, Division of Haematology and Medical Oncology Albert-Ludwigs-University Freiburg
Phone: +49-761-270-3405, eMail: mertelsmann@mm11.ukl.uni-freiburg.de, Web:
http://www.uniklinik-freiburg.de/k/med/aim1/en/all/shortdescription.xml
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